Comments on: Meditation Resources for People Living with Chronic Illness or Pain http://fourwallsnolimits.net/meditation-resources-for-people-living-with-chronic-illness-or-pain Surviving and thriving while confined to bed, homebound, or otherwise stuck in one place Thu, 08 Mar 2012 02:54:42 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: elaine http://fourwallsnolimits.net/meditation-resources-for-people-living-with-chronic-illness-or-pain#comment-7636 elaine Sat, 14 May 2011 22:58:45 +0000 http://fourwallsnolimits.net/?p=362#comment-7636 i do not have fibro, but i have a chronic disability that requires me to do things spontaneously. It is almost 9 years since a facelift has caused scar tissue and adhesions on muscle and nerve. I have just had a palate graft to raise my lids which wont close from a lack of tissue. all extremities have neuropathy from compression. Then there is neuralgia, headaches,blood pressure irregularities, hoarseness, garbled speech,dysphasia. first came the doctors denial an disbelief that this could happen. finally with no other medical problems, the real cause was evident. I am short flexible tissue and my body suffers . my arms and legs are uneven and my neck is imbalanced. I am a candidate for skin grafts, like a burn victim. surgery has risks. i am almost 100 percent certain that the last surgery failed to close my lids. I dont know what will follow. I must believe that i will improve to a degree but i will never be the same. I try to do things whenever i am out of bed. some days are futile and non productive. i plant, cook, bead. decorate. I am simply sad that i am so inactive in a life that was so full. yes, i am sad and depression follows me. I look like i can participate, so i am pushed by others into trying to get out of the house. If i do so, I can become very ill for days. i am trying, but it is hard. i want more of life. i refuse to give up. i do not have fibro, but i have a chronic disability that requires me to do things spontaneously. It is almost 9 years since a facelift has caused scar tissue and adhesions on muscle and nerve. I have just had a palate graft to raise my lids which wont close from a lack of tissue. all extremities have neuropathy from compression. Then there is neuralgia, headaches,blood pressure irregularities, hoarseness, garbled speech,dysphasia. first came the doctors denial an disbelief that this could happen. finally with no other medical problems, the real cause was evident. I am short flexible tissue and my body suffers . my arms and legs are uneven and my neck is imbalanced. I am a candidate for skin grafts, like a burn victim. surgery has risks. i am almost 100 percent certain that the last surgery failed to close my lids. I dont know what will follow. I must believe that i will improve to a degree but i will never be the same. I try to do things whenever i am out of bed. some days are futile and non productive. i plant, cook, bead. decorate. I am simply sad that i am so inactive in a life that was so full. yes, i am sad and depression follows me.

I look like i can participate, so i am pushed by others into trying to get out of the house. If i do so, I can become very ill for days. i am trying, but it is hard. i want more of life. i refuse to give up.

]]> By: Alyssa http://fourwallsnolimits.net/meditation-resources-for-people-living-with-chronic-illness-or-pain#comment-1624 Alyssa Fri, 16 Apr 2010 03:37:24 +0000 http://fourwallsnolimits.net/?p=362#comment-1624 You provide some really great advice and thoughts about disability and assistance. You should check out my blog DisCo: Disability Conversations. I am trying to form a community for people to share their experiences to help people with varying disabilities to realise that there are answers and opportunities. I am looking for guest bloggers! You provide some really great advice and thoughts about disability and assistance. You should check out my blog DisCo: Disability Conversations. I am trying to form a community for people to share their experiences to help people with varying disabilities to realise that there are answers and opportunities. I am looking for guest bloggers!

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