Comments on: The Realities of Lyme Disease http://fourwallsnolimits.net/the-realities-of-lyme-disease Surviving and thriving while confined to bed, homebound, or otherwise stuck in one place Sat, 14 May 2011 22:58:45 +0000 hourly 1 http://wordpress.org/?v=3.1.2 By: Alejandro Loynaz L http://fourwallsnolimits.net/the-realities-of-lyme-disease#comment-569 Alejandro Loynaz L Tue, 15 Sep 2009 15:58:27 +0000 http://bedbound.org/?p=176#comment-569 Questions about Lyme’s mimic on Parkinsion’s Hello to all. I found your article very interesting. In fact I was diagnosed for something called Idiopathic Young Onset Parkinson’s Disease in my mid thirties and after a very stressful episodes in my life. I’m a civil engineer and my line off work has put me in contact with a LOT of dangerous “materials” such as Lead and Mercury based Paints and Chemicals. Insecticides such as B-HCH and Herbicides such as Paraquat, but also with lots of ticks. I have found that all of them are the “probable cause” of my Idiopathic illness. I live in Venezuela , here we have lots of those little animals. But I’ve done some hiking and fishing over the Appalachians and Rockies, in New Hampshire, Maine, and Canada Wilderness but I have also played Golf in some resorts at Florida and I’ve tried to retrieve some of those Out of Bounds. So I have been bitten by the best of the 1st and 3rd world’s ticks. Until now, I never thought those little pest could be the real cause of my PD. A couple weeks ago I went to a clinic in Florida to see a special MD, as Dr. House in the TV show (but without the annoying sense of humor) he has seen more that the Movement Disorder, he has studied the whole picture, looking for the other part of the iceberg not just what he could see on the surface. We. Both, where puzzled by some of my other symptoms such as: heat/cold waves, shivers in hot days and sweat on cold ones, eye sight sudden changes (got six pairs of lenses), loss of smell, of hearing capability, sleeping disorder, allucinations, panic, worries, join pains, neck stiffness, jaws pain and many others, and he came with this wild idea and asked me: Have you ever been bitten by a tick? I said: Off course, lots of times. So he asked my for a blood sample to send it to a lab. At this moment I’m waiting for the results. But after doing some research on LD and NeuroLD that little thing could be responsible for my father death from MSA, my grandmother from Alzheimer, 2 aunts with fibromyalgia another one with depression and a rare stiffness in the jaw and my PD. We all had a common factor, we all were bitten lots of times by ticks at grandfather’s farm . If the ticks are found guilty, can anybody tell me about my prognosis, what to expect in the future. I’m I ever be the one I used to be? How bad id the treatment?, Thanks for the opportunity to write this, Sincerely Alejandro L. Questions about Lyme’s mimic on Parkinsion’s
Hello to all. I found your article very interesting. In fact I was diagnosed for something called Idiopathic Young Onset Parkinson’s Disease in my mid thirties and after a very stressful episodes in my life. I’m a civil engineer and my line off work has put me in contact with a LOT of dangerous “materials” such as Lead and Mercury based Paints and Chemicals. Insecticides such as B-HCH and Herbicides such as Paraquat, but also with lots of ticks. I have found that all of them are the “probable cause” of my Idiopathic illness.
I live in Venezuela , here we have lots of those little animals. But I’ve done some hiking and fishing over the Appalachians and Rockies, in New Hampshire, Maine, and Canada Wilderness but I have also played Golf in some resorts at Florida and I’ve tried to retrieve some of those Out of Bounds. So I have been bitten by the best of the 1st and 3rd world’s ticks. Until now, I never thought those little pest could be the real cause of my PD.
A couple weeks ago I went to a clinic in Florida to see a special MD, as Dr. House in the TV show (but without the annoying sense of humor) he has seen more that the Movement Disorder, he has studied the whole picture, looking for the other part of the iceberg not just what he could see on the surface. We. Both, where puzzled by some of my other symptoms such as: heat/cold waves, shivers in hot days and sweat on cold ones, eye sight sudden changes (got six pairs of lenses), loss of smell, of hearing capability, sleeping disorder, allucinations, panic, worries, join pains, neck stiffness, jaws pain and many others, and he came with this wild idea and asked me: Have you ever been bitten by a tick? I said: Off course, lots of times. So he asked my for a blood sample to send it to a lab. At this moment I’m waiting for the results. But after doing some research on LD and NeuroLD that little thing could be responsible for my father death from MSA, my grandmother from Alzheimer, 2 aunts with fibromyalgia another one with depression and a rare stiffness in the jaw and my PD. We all had a common factor, we all were bitten lots of times by ticks at grandfather’s farm .
If the ticks are found guilty, can anybody tell me about my prognosis, what to expect in the future. I’m I ever be the one I used to be? How bad id the treatment?,
Thanks for the opportunity to write this,
Sincerely
Alejandro L.

]]> By: Jo-Ann Colburn http://fourwallsnolimits.net/the-realities-of-lyme-disease#comment-397 Jo-Ann Colburn Fri, 07 Aug 2009 02:35:58 +0000 http://bedbound.org/?p=176#comment-397 Thank you for sharing your story. I am currently being treated for lyme disease. I also did not have the rash. When I asked for the lyme test the doctor told me that the tick hadn't been in me long enough for it to have transmitted the disease to me.(It wasn't in me more than a few hours) There is so much that doctors don't know about this disease and what it is like when you have it. I have never experienced fatigue like this before. I am looking forward to being on the other side of all of it. Sharing your story helps everyone! Thank you! Thank you for sharing your story. I am currently being treated for lyme disease. I also did not have the rash. When I asked for the lyme test the doctor told me that the tick hadn’t been in me long enough for it to have transmitted the disease to me.(It wasn’t in me more than a few hours) There is so much that doctors don’t know about this disease and what it is like when you have it. I have never experienced fatigue like this before. I am looking forward to being on the other side of all of it. Sharing your story helps everyone! Thank you!

]]> By: jason Nolan http://fourwallsnolimits.net/the-realities-of-lyme-disease#comment-280 jason Nolan Thu, 02 Jul 2009 10:22:38 +0000 http://bedbound.org/?p=176#comment-280 fascinating. I've not read of lyme disease from a personal experience perspective. fascinating. I’ve not read of lyme disease from a personal experience perspective.

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